Today was hard. There was a big meeting with everybody (including Mike and his eldest son who showed up unexpectedly this morning) from Alaska. When all the doctors said their piece to Mike explaining to him in various ways that they could fix his heart, but it wouldn’t fix anything else going on and if they did the procedures it could make what is going on worse. Mike still did not seem to understand (or he is just clinging to that Denial) the situation.
That left myself, Dave (Mikes son) and a group from Pallative Care to explain to my husband this was his end of life, and still, he seemed to only cling to the fact that the surgeons said they “could” fix him. That’s all he heard, that’s all he wanted to hear. It was exhausting and a long meeting of which I recorded it for the sake of the kids that didn’t come to see their dad.
In the end, Mike will go to Home Hospice. They told me that they are “the new 911” Should he fall in the house, I am to call them straightaway. They will come out immediately and they are available for both of us 24/7. They will take over in every aspect of his care, visiting 3 days a week. They will look at his meds and toss away the ones that he is taking to prevent something he “might” get in the future- take him off the toxic chit- he has been on opiods for ten years! So his kidneys failing at this stage is no surprise, that is what hydrocodone does, it poisons the kidneys. They will be here for me, for spiritual support, emotional support, whatever I need, and if the care becomes too burdensome, they will take him for 5 days at no charge and put him into a facility to give me a much-needed break.I am ashamed to say that during the meeting, I couldn’t keep it together and when I started to cry, a nurse came over and gave me a box of kleenix. I told her I was sorry that I had broke down and she hugged me and said “Are you kidding me? If I was in your position, I would be on the floor in a puddle!” That made me laugh.
I know that Mike knows that he is dying and if he wants to play that life is great and a butterfly has landed on his nose and all is right with the world, then I can play along. I know it is going to be hard. He wants to die here and that is not something to look forward to, but it is what it is. His insurance does not cover long-term care of this measure but Hospice Home will be free and they will be available 24/7. If he falls in the house, I am to call them instead of the paramedics. He will be on a morphine pump, he will have a catheter to make it easier on him and I guess we will just continue on and when God knocks on his heart one final time, my hope is his last days were easier for him than his past days have been.
Love you guys, thanks for being here.




